The FoI Act is designed to allow public access to information held by public bodies which is not routinely available through other sources. Access to information under the Act is subject to certain exemptions and involves specific procedures and time limits.
Under the Freedom Of Information Act, anyone is entitled to apply for access to information not otherwise publicly available. Each person has a right to:
The following records come within the scope of the Act:
Applications for information under the FoI Act should be submitted to:
Data Protection Officer (DPO)
National Cancer Registry
Building 6800
Cork Airport Business Park
Kinsale Road
Cork.
Tel: +353 (0)21 431 8014
Applications should be made in writing and should indicate that the information is sought under the Freedom of Information Act, 2014. Requests sent by post should be sent to the following address:-
Data Protection Officer (DPO)
National Cancer Registry
Building 6800
Cork Airport Business Park
Kinsale Road
Cork
In preparing a request the following guidelines should be followed:
The Freedom of Information Act, 2014 sets down strict time limits for processing requests.
It may be necessary to extend this period for up to four more weeks if:
If your request is granted:
The Act sets out a series of exemptions to protect sensitive information where its disclosure may damage key interests of the State or of third parties. Where the National Cancer Registry invokes these provisions to withhold information, the decision may be appealed. Decisions in relation to deferral of access, charges, forms of access, etc. may also be the subject of appeal. Details of the appeal mechanisms are as follows:
You may seek internal review of the initial decision which will be carried out by an official at a higher level if:
This is deemed to be a refusal of your request and allows you to proceed to internal review.
Requests for internal review should be submitted in writing to:
Data Protection Officer (DPO)
National Cancer Registry
Building 6800
Cork Airport Business Park
Kinsale Road
Cork
These reviews should clearly state that they are Freedom of Information requests. They must be submitted within four weeks of the initial decision. The National Cancer Registry must complete the review within three weeks of receipt of internal review application. Internal review must normally be completed before an appeal may be made to the Information Commissioner.
If following completion of the internal review you still have been refused in part or total, you may seek independent review of the decision from the Information Commissioner. Also if you have not received a reply to your application for internal review within three weeks, this is deemed to be a refusal and you may appeal the matter to the Commissioner. In general an application for review by the Commissioner must be made within 6 months of the notification of the decision by the public body.
Appeals must be made in writing to the Information Commissioner at the following address:
Office of the Information Commissioner
18 Lower Leeson Street
Dublin 2
Tel 01-6785222 LoCall 1890 223030
Fax 01-6610570
email foi [at] ombusdman.irlgov.ie
The Commissioner's decision can be appealed to the High Court on a point of law only.
There is no longer an application fee when making an initial FoI request.
A standard application fee of €30 must accompany an application for internal review under section 14 of the Act.
A reduced fee of €10 applies if the person bringing the application is a medical card holder or a dependent of a medical card holder.
The following internal review applications are free of charge:
A standard application fee of €50 must accompany applications to the Information Commissioner for review of decisions made by public bodies under section 34 of the Act.
A reduced fee of €15 applies if
The following applications to the Information Commissioner do not require an application fee:
Fees may be charged, for the searching for, retrieval of and copying of records, as follows:
Section 27 of the FoI Act sets out the rules for applying search and retrieval fees. Fees are currently set as follows in accordance with Statutory Instruments No. 531 of 2014
The National Cancer Registry currently makes a large volume of information available to the public in relation to its functions and activities. This includes epidemiological data [1] and a list of publications [2] available to download. Such information will continue to be available informally without the need to use the Freedom of Information (FoI) Act.
Section 8 of the Freedom of Information Act 2014 requires FoI Bodies to prepare and publish a scheme concerning the publication or giving of information outside of FoI provided that the provision or publication of such information is not prohibited by law.
Section (8), Freedom of Information Act, 2014.
The National Cancer Registry is a publicly appointed body which was established in 1991 to collect and classify information on all cancer cases which occur in Ireland. Our activities include:
Staffing Dec 2015 | WTE | Number | |||||||||
---|---|---|---|---|---|---|---|---|---|---|---|
Job title | Grade | Administration | Data | IT | Research | CDR | Administration | Data | IT | Research | CDR |
All staff | 4.8 | 10.6 | 4.6 | 10.1 | 15.3 | 6 | 11 | 6 | 11 | 19 | |
Permanent contracts | |||||||||||
All permanent | 4 | 7.6 | 4.6 | 3.6 | 15.3 | 5 | 8 | 6 | 4 | 19 | |
Grade VII | 1 | 1 | |||||||||
Grade III | 1 | 1 | |||||||||
Grade IV | 1 | 1 | |||||||||
Grade IV | 2 | 2 | |||||||||
Grade V | 1.5 | 2 | |||||||||
Grade IV | 1 | 1 | |||||||||
Grade V | 1 | 1 | |||||||||
Grade V | 1 | 1 | |||||||||
Grade V | 1 | 1 | |||||||||
Grade VI | 0.76 | 1 | |||||||||
Grade V | 1 | 1 | |||||||||
Grade V | 1 | 1 | |||||||||
Grade V | 0.6 | 1 | |||||||||
Grade V | 0.6 | 1 | |||||||||
Grade VI | 1 | 1 | |||||||||
Grade VI | 0.5 | 1 | |||||||||
Grade VII | 0.5 | 1 | |||||||||
Grade VII | 0.5 | 1 | |||||||||
Grade VII | 0.81 | 1 | |||||||||
Grade VIII | 1 | 1 | |||||||||
Senior Lecturer | 1 | 1 | |||||||||
Senior Staff Nurse | 8.82 | 12 | |||||||||
Staff Nurse | 6.5 | 7 | |||||||||
Specified Purpose contracts | |||||||||||
Total | 0.8 | 3 | 6.5 | 1 | 3 | 7 | |||||
Grade VI | 4 | 4 | |||||||||
Grade V | 2.5 | 3 | |||||||||
Grade IV | 3 | 3 | |||||||||
Principal Officer | 0.8 | 1 |
The NCR provides information to the general public on cancer incidence and mortality. This information can be downloaded from the NCR website by clicking on the relevant links below. Cancer factsheets are also provided for download. These are a useful one page summary of statistics for a particular cancer, including the number of new cases diagnosed per year and the mortality rate for cancer in Ireland.
Not applicable at the current time.
Annual financial statements for the National Cancer Registry are available on the NCR website. Members of the NCR Board do not receive remuneration for their membership of the Board. Expenses received by Board members in relation to travel and subsistence are listed in the annual financial statements.
The current CRS system was developed a number of years ago and has been amended and expanded since.
The CRS replacement project will replace the current systems with a single system. As part of the project, there is a work package to deliver online connectivity to as many as possible locations.
The budgeted cost of this project is €415,000 and it is expected to be delivered in 2016.
NCR procurement policy and details of any tenders are available by clicking on the links below;
This policy aims to ensure that the National Cancer Registry adheres to effective, strategic and professional procurement methods which comply with all relevant EU Directive and Government legislation and recommendations. Good purchasing practices within the Registry will ensure that all funds committed to purchase goods and services obtain optimum quality, service and value for money including delivery, customer service and overall supplier performance. At the same time it will also ensure that the Registry will meet its obligations in terms of
The procurement policy covers the management and control of all non-pay expenditure.
The National Cancer Registry Board is responsible for all funds of the Registry irrespective of the source or however generated. The Board delegates authority to purchase from these funds to the Director and the senior management team.
The Registry places great emphasis on accountability, efficiency, transparency and value for money. This is in line with Government policy in the public service. The Government guidelines “Public Procurement Guidelines Competitive Process” outlines the national procedures to be followed by all persons involved in the award of contracts. All procurement activity within the Registry shall adhere to the contents of these guidelines.
The following principles must be complied with:
The Internal Procedures for the National Cancer Registry are summarized as follows:
VALUE | PROCEDURE |
---|---|
Under €1k | Only 1 quote required |
Over €1k to €25k (€10k for ICT) | Seek 3 written quotations |
Over €25k (€10k for ICT) to €209k | Advertise on eTenders |
Over €209k | Official Journal of the EU (OJEU) via eTenders |
Note: All values are excluding VAT and apply to the total contract period e.g. a contract taken out for a 3 year period with an annual value in excess of €8,333 per annum ex VAT has to be advertised on eTenders.
The Budget holder has prime responsibility for ensuring that procurement within their section is carried out in compliance with this policy.
Official Purchase Orders are to be issued for all good and services and are to be authorised as follows:
VALUE | AUTHORISATION |
---|---|
Up to €1,000 | Any member of the SMT |
Up to €2,000 | Senior Administrator |
Up to €20,000 | Director |
Over €20,000 | Board member |
Where a series of closely similar purchases (e.g. stationery, printing) are made from the same supplier over a period, the aggregate value of these over a twelve month period should be used to decide on the procedures to be followed. Best practice in this case would be to contract with a supplier for all purchases of the same type over the year, using normal procurement practices.
In general, central procurement frameworks and contracts established by the Office of Government Procurement should be utilized (Circular 10/13). Where a central procurement framework is not utilized a value for money justification should be provided.
Date of purchase.................................................................................................................................................
Person responsible.............................................................................................................................................
Signature..............................................................................................................................................................
Supplier................................................................................................................................................................
...............................................................................................................................................................................
Item(s) purchased...............................................................................................................................................
...............................................................................................................................................................................
...............................................................................................................................................................................
...............................................................................................................................................................................
Aggregate value..................................................................................................................................................
Formal tendering process [ ]
Informal contacts with 3 or more quotes [ ]
Other [ ]
Brief description of process..............................................................................................................................
...............................................................................................................................................................................
...............................................................................................................................................................................
...............................................................................................................................................................................
Reason(s) for choice of process.......................................................................................................................
...............................................................................................................................................................................
...............................................................................................................................................................................
...............................................................................................................................................................................
Reason(s) for choice of supplier......................................................................................................................
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NCR PROCUREMENT POLICY | |
---|---|
Version | 5 |
Last revised | January 2016 |
Revised by | Rose O’Mahony |
Date of signature | Signed |
The National Cancer Registry routinely publishes information such as research reports, research publications, financial statements, minutes of NCR Board meetings and FoI disclosure log. All of these are available by clicking on the links below.
Date of receipt of FoI request | Our Ref | Request details | Applicant details | Decision due date | Date released | Decision made |
---|---|---|---|---|---|---|
31/03/2015 | FoI 201501 | ‘Copies of the minutes from the last two National Cancer Registry Board meetings and a copy of all reports/documents circulated at these meetings’. | Journalist | 28/04/2015 | 21/04/2015 | Part granted |
23/10/2015 | FoI 201502 | ‘Copies of the minutes from the last two National Cancer Registry Board meetings and a copy of all reports/documents circulated at these meetings’. | Journalist | 20/11/2015 | 06/11/2015 | Part granted |
Date of receipt of FoI request | Our Ref | Request details | Applicant details | Decision due date | Date released | Decision made |
---|---|---|---|---|---|---|
04/07/2016 | FOI 201601 | ‘Copies of the minutes from the last three National Cancer Registry Board meetings and a copy of all reports/documents circulated at these meetings’. | Journalist | 29/07/2016 | 13/07/16 | Granted in full |
01/08/2016 | FOI 201602 | 'Number of children (less than 16 years old) with cancer in the UK and Ireland between 2002-2012'. | Researcher | 26/08/2016 | 04/08/2016 | Released outside of FOI. No UK information available from NCRI. |
07/06/2016 | FOI 201603 | 'Figures of all types of cancer in Donegal from 2006 to 2016'. | Donegal Cancer Group | 01/07/2016 | 08/06/2016 | Released outside of FOI |
12/12/2016 | FOI 201604 | 'Copies of the minutes from the last two National Cancer Registry Board meetings and a copy of all reports/documents circualated at these meetings'. | Journalist | 06/01/2017 | 16/12/2016 | Granted in full |
Date of receipt of FoI request | Our Ref | Request details | Applicant details | Decision due date | Date released | Decision made |
---|---|---|---|---|---|---|
NCR board meetings take place on a regular basis over the course of a year. Click on the links below to download the minutes of the most recent meetings.
This report under Section 22 of the Protected Disclosures Act 2014 (as amended) (the “Act”) covers the period from 1 January 2024 to 31 December 2024.
The National Cancer Registry Board has established internal reporting channels and procedures in accordance with the Act which are detailed in its Protected Disclosures Policy.
No protected disclosures were made to the National Cancer Registry Board under the Act during the period covered by this report. There are no open investigations or proceedings in respect of protected disclosures relating to the years preceding the period covered by this report.
Links
[1] https://www.ncri.ie/data
[2] https://www.ncri.ie/publications
[3] https://www.ncri.ie/publications/cancer-trends-and-projections
[4] https://www.ncri.ie/research
[5] https://www.ncri.ie/publications/statistical-reports
[6] https://www.ncri.ie/about/history
[7] https://www.ncri.ie/foi/foi-topics/information-about-foi-body/classes-records-held
[8] https://www.ncri.ie/departments/board
[9] https://www.ncri.ie/sites/ncri/files/documents/GovernanceFrameworkfortheNationalCancerRegistry24September2010.pdf
[10] https://www.ncri.ie/sites/ncri/files/foi-files/Corporate%20plan%2020160208.docx
[11] https://www.ncri.ie/sites/ncri/files/foi-files/1st%20April%202017%20salary%20scales.xls
[12] https://www.ncri.ie/foi/foi-topics/information-about-foi-body/grading-structure
[13] https://www.ncri.ie/about/staff
[14] https://www.ncri.ie/contact
[15] https://www.ncri.ie/data/incidence-statistics
[16] https://www.ncri.ie/data/survival-statistics
[17] https://www.ncri.ie/data/maps
[18] https://www.ncri.ie/factsheets
[19] https://www.ncri.ie/research/projects
[20] https://www.ncri.ie/research/research-publications
[21] https://www.ncri.ie/publications/annual-reports
[22] https://www.ncri.ie/foi/foi-topics/financial-information/spending-capital-projects
[23] https://www.ncri.ie/content/statutory-declarations
[24] https://www.ncri.ie/foi/foi-topics/procurement/ncr-procurement-policy-and-procedures
[25] https://www.ncri.ie/sites/ncri/files/foi-files/Supplier%20terms%20and%20conditions%2020160209.pdf
[26] http://www.etenders.gov.ie
[27] http://www.procurement.ie/
[28] http://etenders.gov.ie/
[29] https://www.ncri.ie/publications/research-reports
[30] https://www.ncri.ie/foi/foi-topics/information-routinely-published-and-miscellaneous/foi-requests-%E2%80%93-disclosure-log
[31] https://www.ncri.ie/foi/foi-topics/information-routinely-published-and-miscellaneous/minutes-ncr-board-meetings