Who we work with

Key stakeholder groups NCRI works with

Some examples of the stakeholders are listed in the table below. The ordering of the list does not imply importance. This list is non-exhaustive. 

How does NCRI work with these stakeholder groups?

Hospitals 

NCRI collaborates with private and public hospitals and clinics to ensure comprehensive and accurate data collection on cancer cases. By sharing information and insights, NCRI helps healthcare providers plan cancer services and improve patient care based on the latest cancer trends and outcomes. 

Academic/research institutions 

Partnerships with universities and research organisations are vital for advancing cancer research. By providing controlled access to its database, NCRI enables researchers to conduct studies.  These studies can lead to new insights into trends, risk factors, treatment options and strategies for cancer prevention and control. 

Government departments 

NCRI works closely with Government departments to align its efforts with public health policies and initiatives.  This ensures that the work undertaken by NCRI resonates with policy makers' priorities.  Reports and papers produced by NCRI help to ensure that cancer remains important on the public health agenda. 

State agencies / public bodies

Collaborating with government bodies, particularly those focused on cancer prevention and screening services, is essential for comprehensive cancer control and improving health outcomes.  

By sharing data and resources, these collaborations can:  

• enhance public health strategies
• improve early detection and treatment outcomes
• foster a more informed and health-conscious population  

NCRI data also assists in evaluating the effectiveness of cancer prevention programs. This helps assess whether these programs are meeting their objectives. This data-driven approach allows for continuous improvement in screening and prevention strategies. Collaboration also extends to public awareness campaigns. NCRI data provides insights into the types of cancers most prevalent in specific demographics, guiding the development of targeted educational efforts and other health interventions. These campaigns aim to raise awareness about the importance of regular screening and adopting healthy lifestyles to reduce cancer risk. 

Patient advocacy groups 

Engaging with patient advocacy groups allows NCRI to better understand the needs and concerns of cancer patients and their families. These engagements help build awareness regarding cancer data needed to promote awareness, education, and support initiatives that empower patients and improve their experiences throughout the cancer journey.  

Pharmaceutical sector 

By collaborating with industry leaders, NCRI can facilitate the evaluation of new therapies and the establishment of clinical trials. NCRI data aids pharmaceutical companies in identifying cancer trends. 

Cancer advocacy groups 

NCRI works with cancer advocacy groups by providing data on cancer incidence and outcomes. This allows these organisations to: 

• target populations in need
• advocate for necessary resources and services
• develop data based public awareness campaigns
• provide resources and support services for cancer patients and survivors 

Moreover, cancer advocacy groups partner with the NCRI to promote and fund collaborative research projects. These projects help to advance insights into cancer trends, cancer treatment and support initiatives. 

International Cancer Registries 

Internationally cancer registries collaborate through networks, working groups and cross-country organisations. These collaborations facilitate the standardisation of data collection methods, ensuring that cancer statistics from different countries are comparable. This facilitates the sharing of international data. International collaboration is essential for: 

• identifying global patterns and disparities in cancer burden
• benchmarking cancer control and treatment strategies
• identifying best practices
• uncovering insights into the effectiveness of different healthcare systems 

This collective knowledge is invaluable in formulating strategies to combat cancer more effectively and equitably worldwide, contributing to improved cancer outcomes on a global scale. 

Media

NCRI plays a pivotal role in public health communication. Its collaboration with the media is essential for raising awareness about cancer incidence, prevalence, and survivorship. This partnership ensures that accurate, relevant, and timely information reaches the public. NCRI provides expert insights and data to journalists, equipping them with the knowledge necessary to report accurately on complex cancer-related issues. This collaboration helps combat misinformation and fosters a more informed public discourse around cancer.   

Memorandums of Understanding 

NCRI has established Memorandums of Understanding (MOU) with key organisations, groups, and consortiums.   

Cross Border Co-operation 

Cross border cooperation is a feature of the work of NCRI. It is a member of the Ireland-Northern Ireland-National Cancer Institute Cancer Consortium. Established in 1999 following the Good Friday Agreement, the Consortium has published multiple All-Ireland Cancer Statistics reports. These reports are the joint effort of the NCRI and the Northern Ireland Cancer Registry (NICR) to document cancer rates, trends, and outcomes on the entire island of Ireland. 

Collaborative Projects 

NCRI contributes to several national and international projects to help improve cancer registration, advance research, and improve national and international cancer outcomes.