The data journey

The data journey refers to the various stages through which an organisation’s data moves from collection to use. Here is a detailed look at the data journey of the National Cancer Registry.    

  1. 1

    The patient

    The data journey is a complex yet vital process that starts with the patient. NCRI collects information on the diagnosis and primary treatment of the patient’s cancer. Data is collected on primary treatments that take place within approximately 12 months of diagnosis.
    Read more about the patient
  2. 2

    Data sources

    NCRI obtains its data from a number of sources. The majority of notifications to NCRI come from histopathology laboratories. The remainder comes from sources such as Hospital In-Patient Enquiry (HIPE) system, death certificates and radiotherapy.
    Read more about data sources
  3. 3

    Record linkage

    Once the data has been imported and put into the correct format. New registrations are created or existing registrations updated.
    Read more about record linkage
  4. 4

    Quality assurance

    Quality assurance measures are implemented at every stage of the data journey, from when the data is imported into the system to the time a tumour is “closed” on the system.
    Read more about quality assurance
  5. 5

    Outputs

    Effective and transparent communication of NCRI data is essential in advancing public health efforts. By employing a variety of strategies, NCRI ensures that its data reaches the people who need it most.
    Read more about outputs