A Report on Findings from the National Cancer Registry and Patient Voice in Cancer Research Workshop

On the 10th of April 2019 a Patient Voice in Cancer Research (PVCR) workshop was jointly hosted by the National Cancer Registry (NCRI) and PVCR in University College Dublin. Cancer survivors, patient advocacy groups and researchers attended the event which was supported by the Irish Cancer Society. The aim of the workshop was to inform cancer survivorship needs assessment research which will be conducted by the NCRI. This research will include a large nationwide survey on the unmet needs of cancer survivors. The results of this research study will also help the NCRI develop methods on how to best capture the cancer patient experience on a routine basis.

This report highlights the key findings from the workshop. The NCRI has produced a brief policy response document to address the issues raised at the workshop, which can be downloaded here.